ACCO's Board and Staff

Since 1970 American Childhood Cancer Organization has been respected as an essential and integral provider of programs and services required by families of children and adolescents with cancer across the country. Together with our local affiliates we address the critical needs that families face today. We believe strongly that families need accurate information, advocacy, and support from the first day of diagnosis through the rest of the child s life. As a grassroots leader in the childhood cancer community, it is our responsibility to speak for the needs of the families and survivors, and to help shape policy, research and programs on the national level that impact the lives of families today and tomorrow.

Our organization was founded by a talented and committed group of parents of children with cancer, and we have placed a priority on ensuring that those making policy decisions today understand what a family goes through when their child has been diagnosed with cancer. Over two thirds of our organization s Board of Directors and staff are either survivors or a direct family member of a child or adolescent who had cancer. We understand personally that this is a family disease and it is a disease that impacts the family for life. The board and staff of ACCO are committed to serving our community until the day no child dies, or is left with life-long effects from this devastating disease.

 

Board Members

 

Naomi Bartley, President

Naomi Bartley, BSc, BEd works as a Clinical Research Associate at the pharmaceutical company MedImmune, and is a biotechnology master's candidate at Johns Hopkins University.  Naomi brings over 10 years of clinical and pre-clinical research experience and intends to use this knowledge to help advance childhood cancer therapies.  Naomi is also a two time cancer survivor and brings a personal perspective of childhood cancer to the Board of Directors. Diagnosed at the age of 7 with acute myelogenous leukemia, Naomi represents one of the first groups of childhood cancer survivors to have undergone a bone marrow transplant. Her second cancer which was a direct result from her first cancer treatment turned her into a powerful advocate for the development of new targeted therapies to treat childhood cancer. In that role, Naomi founded her organization, Naomi's Hope for a Cure and hosted a gala event in Washington DC in 2007 which raised $250K for the integrated pediatric cancer data portal project with ACCO. Naomi is also the proud mother of her own little miracle, Hope Isabella.  Hope was born in 2008 at 25 weeks gestation, weighing 1 pound 7 ounces and is now a healthy and happy 4 year old.

 

Janine Lynne, Vice President

Janine has been a board member of ACCO since 2003 and is grateful for the opportunity to be part of the largest national grassroots nonprofit organization dedicated to improving the lives of children and adolescents with cancer. Her teenage son is a survivor of acute lymphoblastic leukemia. Janine has worked and volunteered as a child advocate in many capacities over 20 years with a special interest in children with special needs. She has a B.S. in Child Development and Family Studies from Montana State University, and pursued graduate work in psychology and education. She currently lives in Hawaii.

 

Ken Phillips, Treasurer

Ken is a retired Air Force Officer of 23 years and following that retired from Computer Sciences Corporation after an additional 20 years of service. He holds a Bachelor of Science degree in Mathematics from the University of Massachusetts at Amherst, MA. Ken as been on the Board of Directors of CCCF since 1994, and has held the office of Treasurer since 1995. He and his wife Marie were active on the Board of Directors of Candlelighters  affiliate  Candlelighters of Southern Colorado, Colorado Springs, CO from 1990 to 2004, at which time they moved to Spirit Lake in North Idaho. Currently Ken also attends and supports the monthly Board of Directors meetings of Candlelighters of the Inland Northwest in Spokane, Washington, in addition to supporting their activities throughout the year. Ken and Marie are bereaved grandparents. Their precious granddaughter died from acute myelogenous leukemia.

 

Judy Mendoza, Secretary

Judy Mendoza grew up in Lafayette, IN, where she obtained a Bachelor's Degree in Education from Indiana University in May 1993. Subsequent teaching jobs led her to the corporate world of an education publishing company and then to the formation of her own free-lance education business. In February 2007, Judy and her husband Michael's lives changed forever. It was then when they learned that their three-and-a-half year old daughter had Stage IV neuroblastoma. After supporting her daughter Abigail through six cycles of high dose chemotherapy, followed by a stem cell transplant, twelve radiation sessions, and a very rough clinical trial with monoclonal antibodies, Judy now regards herself as a proud Cancer Mom on a Mission. Judy lives by the premise that she continues to teach her children  to never give up! Judy is active in raising awareness of the gold ribbon for childhood cancer.

 

Trevor Romain, Member

Trevor Romain is an internationally renowned author and illustrator and is the Chief Creative Officer of the Comical Sense Company. His community work includes hospital visits, school visits, and working with families facing loss of their children through cancer. Trevor also works with Austin Children's shelter, consults with the United National concerning Children of Armed Conflict, tours with the USO to American military bases in countries, and speaks around the world about how cancer kids are true heroes. He has been actively involved with Candlelighters for over 10 years. He is illustrator of Candlelighters  publications Chemo, Craziness and Comfort, My Book about Childhood Cancer; Lift Me Up, an inspiring book filled with wonderful pictures to color, and author/illustrator of an upcoming publication for teens diagnosed with cancer.

 

Steve Payne, Member 

Steve Payne is an active board member and father to Kristin, a stage IV neuroblastoma survivor diagnosed at a mere seven months old. Being an active part of the ACCO board, he is able to support those children, families, and professionals nationwide who battle this dreaded disease until a cure is found. Steve works for IBM and served as president 2003 & 2004.

 

 

Jeff Walters, Member 

Jeff Walters is a Senior Director in the Commercial & Consumer Products division of Acumen Solutions where he is responsible for the delivery of business and technology consulting services to the Educational Services and Non-Profit Sectors. In his professional career, Jeff helps organizations to maximize their efficiency and impact and he brings that same passion to his work with ACCO. Jeff holds a Masters of Business Administration from the Lally School of Management and Technology at Rensselear Polytechnic Institute and a Bachelor of Science in Aerospace Engineering from Pennsylvania State University. Jeff and his wife Valeria live in Chantilly, Virginia with their two daughters.

 

 

Jennifer Cullen Meyer, PhD, MPH, Member 

Jennie earned her doctorate in Epidemiology from UC Berkeley in 2000, with emphasis in cancer risk assessment and bio-statistics. Her professional positions have included her current role as Director of Epidemiologic Research for the Department of Defense Center of Excellence, the Center for Prostate Disease Research (CPDR); Director of Research at the American Legacy Foundation; and a faculty appointment in Georgetown University’s Lombardi Comprehensive Cancer Center. She is a co-author on roughly 40 peer-reviewed scientific publications. She has presented her work at a variety of national scientific conferences.

In March 2011, Jennie and her husband Reggie learned that their daughter, Alexandra, had an aggressive pediatric brain tumor, known as a medulloblastoma. For 13 months, Alexandra fought bravely undergoing surgery, chemotherapy, and radiation to her head and spine. On New Year’s Day 2012, Alexandra completed her treatments and the future seemed bright. Sadly, only two months later, nearly one year after the cancer diagnosis, a follow-up MRI revealed new tumor growth. Alexandra was now deemed terminal. Little Alexandra passed peacefully on April 6, 2012 in her home.

For thirteen long months, Alexandra was a fighter. She will forever be a hero. Her loss has left a gaping hole in the hearts of those who loved her. No parent should ever have to watch their child die from cancer. Alexandra’s experience can serve a greater good. Critical progress needs to be made to provide a cure for every child with cancer. There is so much room for improvement.

 

Danielle Leach, Member 

Danielle grew up in Yonkers, NY. She comes from a family who has unfortunately experienced childhood cancer twice. Her sister is a childhood cancer survivor and her son Mason died of medulloblastoma at age 5 in 2007.

Danielle has over 15 years experience in the health nonprofit industry. Danielle has worked in leadership positions at the American Cancer Society, Ovarian Cancer National Alliance and Strang Cancer Prevention Center in cancer control, program development and implementation.

Danielle is also a dedicated volunteer and advocate for cancer and children's issues. She is the founder of the Mason Leach Superstar Fund at Children's National Medical Center, in memory of her son, Mason. She was one of the key organizers of the 2011 46 Mommas Shave for the Brave, which raised significant funds for pediatric research, as well as a large advocacy effort on the Hill. Danielle also serves on several boards and committees related to children's issues and health in the community. She holds a Master of Public Administration degree in Health Policy and Management from New York University.

 

ACCO Staff

 

 

 

 

 

 

 

 

 

 

Ruth I. Hoffman MPH, Executive Director

Ruth's leadership has resulted in the publication of numerous books including Chemo, Craziness and Comfort, My Book about Childhood Cancer, The Amazing Hannah, published in both English and Spanish, Educating the Child with Cancer, A Guide for Parents and Teachers, Oliver's Story, For Sibs of Kids with Cancer, also available in English and Spanish as well as Life Me Up, an inspiring book filled with wonderful pictures to color.

Ruth is co-founder of Light up the Holidays with Hope, ACCO's National Awareness event, and a committee member of Naomi's Hope for a Cure, a gala event to raise money for pediatric cancer targeted therapy research. Ruth organized the childhood cancer targeted therapy workshop at the World Cancer Congress, held in Washington D.C. in 2006.

Ruth received her B.A. in psychology, and her Bachelors of Education from the University of Western Ontario, Canada, and her Masters of Public Health from the George Washington University's School of Medicine. She is proud recipient of the Leukemia and Lymphoma Society's Tree of Life Award, 2006.

* Tree of Life Award

Quiet Heroes Talk

Ruth I. Hoffman is the mother of eight children, including 28 year old daughter Naomi who is a 21 year survivor of acute myelogenous leukemia (M5). Since 1999, Ruth has been the Executive Director of American Childhood Cancer Organization. In addition to her membership on C-Change, Ruth is a patient consultant for the FDA, serves as a member of the Alliance for Childhood Cancer, the National Coalition for Cancer Research, the NCI TARGET Initiative, and the International Union Against Cancer. She has also served on the American Cancer Society's Child and Cancer Advisory Group, the IRB of Children's National Medical Center, Washington D.C., and a rotating member of the FDA's Pediatric Subcommittee of the Oncology Drug Advisory Committee.

 

 

 

Liz Dicus, Administrative Coordinator 

Liz Dicus is a Texas Native. She is a graduate of Texas A&M University with a Bachelor of Arts in Theatre. While in college, she was involved in several organizations her favorite was Camp Kesem A&M, a summer camp for children who have/ have had a parent with cancer. She was the Camper Care Coordinator for Camp Kesem and was involved and recruiting kids for camp. This was one of her most impactful experiences which impassioned her to work which families affected by cancer.

Upon graduation, she spent a year in California interning at Shakespeare Santa Cruz and South Coast Repertory Theaters. It was an interview with a theater in DC which sparked her move to the area in the fall of 2011. She began working with ACCO in early 2012 and has loved being able to help children and families affected by cancer.