Ongoing Collaborations, Committees, and Other Activities

 

   

 

Located in the Washington DC area, American Childhood Cancer Organization's National office is recognized as the voice representing childhood cancer families and survivors on Capitol Hill. Working to support legislative issues that impact the littlest cancer patients in this country, American Childhood Cancer Organization is an active participant on the national policy committes listed on the ongoing collaborations and committees page (linked below).

American Childhood Cancer Organization represents a voice for pediatric cancer families and survivors to the general public, the medical community, government, schools, employers, and the media. ACCO works with other cancer patient advocacy groups for improved funding of pediatric cancer research and on legislative issues that impact our members.

ACCO Director with President George H.W. Bush

National Cancer Committees

ACCO currently represents families of children with cancer and survivors on the Washington DC-based national cancer committees listed below. As an active member of each committee, Executive Director of American Childhood Cancer Organization, Ruth Hoffman, advocates for the needs of our families.

Memberships

ACCO is a member of the following:

  • The National Coalition for Cancer Research
  • The FDA Council
  • The International Confederation of Childhood Cancer Parent Organizations (ICCCPO)

Referrals

ACCO helps parents dissatisfied with their child's treatment plan find second opinions.

Collaborations

ACCO collaborates with the following organizations:

Ongoing Advocacy Projects

How to Connect with Government

How to write to your congressional representatives.

Links to advocacy agencies

Childhood Cancer Ombudsman Program
Email: gpmonaco@hughes.net

This is a service of the Childhood Brain Tumor foundation that provides information regarding education, rehabilitation, and employment discrimination of childhood cancer survivors.
Review 4/07

Special Needs Advocate for Parents

An organization to help with education, legal and insurance problems - good newsletter articles.
Review 4/02 

Patient Advocate Foundation

A non-profit organization designed as a liaison between patients and their insurers to resolve issues.
Review 4/02

A Lion in the House

A Lion in the House (by Steven Bognar and Julia Reichart) is a documentary that follows several childhood cancer patients through phases of treatment. In association with this project, 'My Lion' provides information kits and training for youth groups that want to do community service around childhood cancer.
Review 8/07
 

Advocating for Your Child

This is a 7-page article to help begin the process of advocating for your child's special needs as related to education. Principles can be applied to other situations.
Review 3/02